Something Larger than Yourself

My kiddo, Matty, and his best friend, Sammy have been nerding out together for over a year now. I'm really quite impressed they have navigated the complicated social situations and hierarchies of neighborhood kids. I am tickled to see the two get into age appropriate trouble together, take up for each other and basically see their bond on display on a regular basis.

Sammy is a great ally for Matt, helping him work through the more aspie moments and understanding when Matty needs space. He's been the autism ambassador for Matty when other kids have asked Matty "why are you so weird?" (true story. And it's autism kids that are supposed to have no filter?).  As a mom, I can't imagine a better friend for my kid.


Remember those days of childhood? One day so and so is friend and the next you have no clue what happened but you're treated like you have the plague. Or maybe it's your aren't cool enough. Or maybe you are different. Maybe you said no to peer pressure. Maybe you saw someone doing something dangerous or wrong and spoke up. Maybe so and so's friend is jealous and starts a rumor about you. We've all been there at some point in our lives. People are mean. Social situations can feel like a battlefield when you are the enemy. Unfortunately kids that are different are often the enemy.

Navigating relationships and social situations as a NT person is not easy. If it were, shows like Jerry Springer would have never existed and Dr. Phil would be out of business. No one would get divorced and Congress would probably be an efficient governing body. No one would commit crimes because people would actually think their actions through. All the world's past and present ills would be erased. Let's face it: NT don't have the social aspect of humanity anywhere close to correct. If we did have it right, we'd be living in Utopia. Being different would be okay.

I'm always a little amazed at the social judgement by NT people. I remember once my husband came home from a kid's birthday party with the kid. Hubby was utterly devastated because other parents made fun of him for not letting our chug can after can soda at five years old. I was shocked. I couldn't believe the judgement passed by other adults just because we helped our kid moderate his behavior, which saves our whole family from sugar-caffiene-crash hell. That judgement came from our choice being different from theirs. I see nothing wrong with teaching our kid how to make healthy choices in a social situation. Cause you know, binge drinking isn't cool at parties. At the same rate, I'm not gonna judge you for letting your child consume their body weight in soda on their birthday or at a party. 

People seem to forget the old saying when you live in a glass houses shouldn't throw stones? I have met a lot of people who could really benefit from social skills training that are well outside the autism community. During a political campaign season, all you have to do is read the news or turn on the television to remind you that humans suck at social skills in general.

This subject, that people are mean to others who are different, ended up playing out in my house the other day. You see, Matty and Sammy have always been open to including new kids in their exploits, but no one has really fit. By fit, I mean no kid has ever been able to hang with the differences of Matty and Sammy in a larger group of kids. Those two always end up being social pariahs (and mostly Sammy by the default of liking and sticking up for my son). There was no third kid with (early) Musketeer ethics (cause don't the Musketeers have a falling out later in life?).

That changed a couple of weeks ago. Enter Teddy. Teddy was a quiet kid, I thought. Matty and Sammy were practically ga-ga over his skateboarding skills. There was no posturing or pretense. He is just a down to earth kid. Teddy is helping the other boys with their skateboard tricks. He just... fits. The two boys made Teddy's visits seem like Tony Hawk himself was showing up at my door.

The other day, Matty told my hubby that Teddy didn't like to speak to people. The kid explained that it wasn't because Teddy was shy or dumb, but because he has a speech impediment. I think it bothered Matty that this really cool, new friend of his didn't think of himself this way. The hubby suggested Matty share his own diagnosis because he can relate to being different.

My kid did just that. He shared with Teddy, he also encouraged Teddy. Different does equal shameful. A speech impediment doesn't mean you have less to say; It just means you have work a bit harder to say it. My kid can certainly relate to communication issues. No one had to say that Teddy has probably faced relentless ridicule by his peers and stigma by adults because of a speech impediment. We know what's its like in this house to be different.

My kid told his friend that there was no shame in being different. Matty related to his new friend in a way that not many others could. Sammy lent support. In the words of Temple Grandin's mother (which I often use myself) different is not less. Different, not less. 

Turns out Teddy has a lot to say. The shy, quiet kid blossomed in my living room. And yes, he does have a speech impediment, but that day it didn't stop him from opening up, chatting away with the boys in front of us parents. He stopped giving me one word answers and there was no silent shaking 'yes' or 'no' of the head. Teddy's whole demeanor changed as his words danced around the room.

Later, when they went outside to skate, you could hear Teddy for the first time hooting and hollering like a boy should. I didn't mind the loudness this time. That noise was a result of my boy who related to and encourage a friend, not by spotlighting sameness, but by relating and embracing differences.  My son took on the challenge of expressing his feelings and thoughts in a way that his friend completely understood. I still feel misty eyed thinking about the positive impact my kid had on his friend's life at that moment, helped a friend remember the power of his voice.

While discussing the boys love for Teddy, my hubby questioned what made Teddy so special to them. I told my husband that the logic to it is simple. Here are two boys who aren't like the other kids around them. They know it. They've been excluded. Teddy adds a piece to that-- he can relate to them. There is strength in numbers. As people, we all want to part of something larger than ourselves-- even if you have an impairment.

Yep, I'm one proud mom.

P.S. I'm sorry if I'm all over the place. For one, I'm outta practice writing. For two, I had surgery yesterday and am loving my pain meds at the moment. 

P.P.S. Later this week, I will be making a really, super exciting announcement!! So stay tuned!! I've been working hard (with the help of some friends) to bring our autism community something really special.

The Psychic (or Vampire Crazy Lady)

See, there's the psychic I was friends with... The hubby and I were actually a member of her paranormal investigative group. We did all sorts of things for them, basically investing time, money and energy into her many causes. I shouldn't say "her" because it was a family affair.

This particular psychic (to the stars, she claims) has three major projects: She charges people for psychic readings, privately, over the phone, email, at parties and events, she publishes (or was publishing, because there hasn't been an issue in a long time) a psychic/wiccan magazine, and does paranormal investigations.

She's a busy lady. When we were friends with her, we helped her. And by help, it always seemed to me that we not provide assistance or do anything along side her, but do it for her. Everything needed to be done immediately because she had deadlines. Yet, when something completed was handed over to her all the sudden the rush, the necessity wore off.

I did mock ups of website for her to improve her business model. She had lackluster sales and being that I was heavy into selling at online venues at the time (which I have been taking a break from since April because of the hubby's health) and with almost 20 years of award winning customer service under my belt, I shared my tips and tricks with her. Her website is out-dated, not user friendly, and basically looks like it's circa. 1995. She did not feel that was a hindrance to her success.

I sent friends to her website and they complained about it. I sent potential advertisers to her page, but never heard back from most of them. When I did, it was the standard "that's not right for my business". Even I didn't want to put out money for advertising in her magazine with her website such a mess. No one would stay on her site long enough to see my ad.

The most embarrassing moment was when the two of us were guests on a popular paranormal internet radio show. She directed listeners to the website to look at evidence from previous investigations. Even the hosts of the show could not get the EVPs to play or so they said. My guess is it just took too long to get the page... or they got lost in the twenty-thousand new spawned tabs and windows.

She uses Facebook, but not a fan page, but a friend page that has a cap on total amount of friends and limits you ability to market your brand. I suggested a fan page, but she wasn't interested. It was a darn shame because people like Aaron Goodwin and Anne Rice have excellent models of fan pages. Anne Rice by far has the most engaging, interactive fan page I've ever seen. She's responded to me personally *swoon*. Aaron Goodwin has not only promoted his television show, but created a lucrative side business with his use of social media. Her time was spent accepting gifts on Facebook, I guess because it's boosted her ego.

None of my suggestions were given a second thought by her, yet my husband could say the exact same thing and it'd be a great idea. You see, she doesn't have a very high opinion of women at all. My husband and I tested this theory all the time with little things. She'd take what he said to heart, not realizing that I told him to say it.

But when it comes to her business, the only person who could ever influence her in those decisions were one of husbands. (She's had twelve). She only seems to wanted to use me as her personal assistant, free of charge. I let her, I ashamed to say. She only wanted to use the hubby to boost her credibility. She has a history of burning through the kindness of friends, sucking them dry like a vampire.

The last command she barked at me was a letter she wished me to type up. She gave me the summary for a reference (because why should she type the letter herself?) of what she wanted said in this letter. She wanted my husband, with the letters behind his name, to sign and deliver it to her. We've given her a letter of reference before, so I was not surprised or unwilling. When I got the email, my jaw dropped to the floor.

I don't know what my husband agreed to exactly, but I'm pretty sure it wasn't that. And if it was, then he did not understand completely thanks to his surgery. (Comprehension is something he has issue with at times) I discussed the outrageous lie of of a reference with him and he agreed that it was not something we wanted to be involved in. I don't want to attract any bad karma, especially since she is even worse with money than we were and has a long track record of either suing landlords or being sued by them. I was not letting her have carte-blanche with my husband's reputation.

I sent her a nice, cordial, but honest reply. Her being a psychic, I assumed that she'd understand that the choice was to prevent bad karma and the tone was kind. I said we could give some other sort of reference, but not that one. I'm not sure she's that good, at least not in emails. Or perhaps selfishness over-ruled any gifts she has because her reply to me spewed venom. You could just feel the evil emanating off the email screen.

And she wonders why bad things keep happening to her?

Reminded me of my ex's crazy rants. She threatened me, my kid, my husband... Oy. She's going to have me deported, dontcha know. I can only hope because I need a vacation and Denmark is a beautiful place filled with my family, so I wouldn't need to pay for a hotel. Ticket to Aalborg, if you would Uncle Sam. (It's too bad I was born in Washington, D.C., huh?) She's going to call someone to punish me for having a homeschooled child with Asperger's Syndrome, too. And she's gonna tell my husband's parents how awful we are (like they don't already know us). She is just gonna get me. Punish me for all my sins against her. Punish me for telling her the truth.

If it were my husband who said any of this, she'd crawl right up his rectum and say "no problem" and leech off of whatever he casts out to her. But I'm a girl, so how dare I not bow down to her?

I was shocked at first, but now I'm flattered and in stitches over this. When I'm 62, I'm gonna wear a big, ugly hat and put spam in people's shopping carts, not on their Facebook feed. I'm gonna sun myself on the beach in some gaudy bathing suit, on a hot pink beach towel. Even if I'm homeless, even if I'm in wheel chair with pink racing stripes and neon yellow flames. I'll pimp our my walker and smile at young kids. I won't go around asking people to lie for me, especially not friends. And I'd be gracious when they refuse such an outrageous favor because I understand that no one owes me anything.